On December 23, the Taylor's learned a word that no one with a son wants to hear far less have invade their lives. Adrenoleukodystrophy, is a genetic disorder that preys unmercifully on boys, rearing it's ugly head in mid childhood. This disease previously offered little hope, but the specialists at Amplatz Children's Hospital feel a bone marrow transplant is Dylan's best hope.
Dylan and his fami...ly have a long journey ahead of them physically and emotionally. Dylan was blessed to have received his bone marrow transplant on Valentine's Day, but he will require a lifetime of care. In the first six months post transplant the doctors anticipate Dylan needing recurrent hospitalizations due to infections and associated illness. He and his family will need to remain in Minnesota for a minimum of six months to ensure he is stable enough to return home to Florida.
The initial expenses related to Dylan's transplant are estimated to be $60,000 above and beyond what their insurance will cover. Reality is it will probably exceed that estimate quickly. Amplatz Children's Hospital is tending to Dylan's physical needs and recognized the Taylor's would need additional assistance to help ensure Dylan has the best outcome possible. They referred his parents to COTA, a not for profit organization the fundraises in honor of patients such as Dylan.
Last night a group of Team Dylan volunteers met with a COTA representative, Amy, and learned about the rays of hope COTA provide to transplant families in need. When you donate to Dylan via COTA 100% of your donation is made available to Dylan and his family to use toward transplant related expenses immediately and long-term. All contributions are tax deductible, and can be submitted by check directly to COTA or via their online payment option.
Paul and Sara will not directly ask for financial assistance from us, but I can't imagine facing the challenges they are and having to ask for help too, it would be unbearable. So I will ask that you please include Dylan and his family in your prayers and contribute to Dylan's COTA account. Remember, there is no donation too small, as my grandmother used to say every little bit counts.
By donatong to COTA in honor of Dylan, you will be making a difference in the life of a very special child!
Thank you.
Dylan and his fami...ly have a long journey ahead of them physically and emotionally. Dylan was blessed to have received his bone marrow transplant on Valentine's Day, but he will require a lifetime of care. In the first six months post transplant the doctors anticipate Dylan needing recurrent hospitalizations due to infections and associated illness. He and his family will need to remain in Minnesota for a minimum of six months to ensure he is stable enough to return home to Florida.
The initial expenses related to Dylan's transplant are estimated to be $60,000 above and beyond what their insurance will cover. Reality is it will probably exceed that estimate quickly. Amplatz Children's Hospital is tending to Dylan's physical needs and recognized the Taylor's would need additional assistance to help ensure Dylan has the best outcome possible. They referred his parents to COTA, a not for profit organization the fundraises in honor of patients such as Dylan.
Last night a group of Team Dylan volunteers met with a COTA representative, Amy, and learned about the rays of hope COTA provide to transplant families in need. When you donate to Dylan via COTA 100% of your donation is made available to Dylan and his family to use toward transplant related expenses immediately and long-term. All contributions are tax deductible, and can be submitted by check directly to COTA or via their online payment option.
Paul and Sara will not directly ask for financial assistance from us, but I can't imagine facing the challenges they are and having to ask for help too, it would be unbearable. So I will ask that you please include Dylan and his family in your prayers and contribute to Dylan's COTA account. Remember, there is no donation too small, as my grandmother used to say every little bit counts.
By donatong to COTA in honor of Dylan, you will be making a difference in the life of a very special child!
Thank you.
You can visit the COTA webpage for more info and to make donations at:
My heart goes out to Dylan and his family. I have a friend who's daughter was just diagnosed with leukemia, different because her prognosis is good and she is expected to recover, but they have a long road ahead of them!
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